The NDF and GOSH are delighted to celebrate rare disease day 2026 by launching the first ever Norrie…
Author: Neil P (page 2)
NDF board & GOSH research team meeting
Great to kickstart 2026 with an NDF board & GOSH research team meeting! It’s going to be an…
Remembering Prof. Maria Bitner-Glindzicz
Sharing in memory of dear Prof. Maria Bitner-Glindzicz – such a kind and amazing geneticist and beautiful human…
RNID Hearing Therapeutics Summit 2025 in London
Such a privilege to attend the RNID Hearing Therapeutics Summit 2025 in London! Amazing to listen to inspirational…
Buddy Dog family day
Josh Horrobin, who is blind and hearing impaired due to Norrie disease, aged 17, joined a Guide Dogs,…
Norrie Disease community virtual meet – 11 May 2025
On Sunday 11th May the Norrie Disease Foundation launched the first in the series of the Norrie Disease…
Calling more people affected by Norrie Disease to take part in the natural history study
This important natural history study is supporting the Norrie Disease hearing loss research at University College London, Great…