The NDF and GOSH are delighted to celebrate rare disease day 2026 by launching the first ever Norrie Disease PPIE group!
NDF and GOSH are thrilled to be launching an exciting opportunity for people with lived experience and key stakeholders in our community to be involved in designing and shaping the research that is happening in Norrie disease. If interested, email James by 31/03/26: j.arwyn-jones@ucl.ac.uk.
For further information, please see our flyer.
