Useful links

Useful links


Findacure is a UK charity that builds the rare diseases community to drive research and develop treatments.


ClearVision is a postal lending library of children’s books designed to be shared by visually impaired and sighted children and adults.


Deafblind is a national charity providing support services to, and campaigning on behalf of, deafblind adults and their carers.


Blind Children UK and Guide Dogs became fully integrated into one charity in January 2017 so that they can build on existing services and support more children with sight loss. They can now provide support for people with sight loss throughout their lives for as long as they need it.


A diverse organization eager to serve individuals with Norrie disease, as well as their families, social circles, educators, employers, and medical professionals. The Norrie Disease Association are working to expand their collective knowledge of Norrie disease by facilitating collaboration among these groups.


SENSE The national (UK) voluntary organization working with and supporting people of all ages who are deafblind or have associated disabilities.

Families seeking Identification Reports and Multi Sensory assessments should visit


Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.


Living Paintings is a charity that produce Touch to see books for blind and partially sighted people of all ages.


Rare Disease UK (RDUK) campaign on behalf of all those affected by a rare disease and all who support them.


The Royal National Institute of Blind People (RNIB) is a UK charity offering information, support and advice to almost two million people in the UK with sight loss.


VICTA supports blind and partially sighted children, young people and their families. VICTA provides support to children and young adults ages 0 to 29.


Our work includes providing high-quality support and care so people confronting deafness, hearing loss and tinnitus have their needs met. We fund research to find a cure for hearing loss, and encourage the take-up of new technology and medical treatments to help manage the condition.