Imagine a world without sight

Now imagine it without sound too.

This is the reality facing children, young people and adults with Norrie Disease.

You can help the NDF fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.

Fundraise or Donate now!

£191 000 
raised since 2017

2021 Goal

Ways to fundraise

Run or ride for us

We have charity places in several iconic races. Join Team NDF and you’ll receive:

  • Fundraising and training support, advice and guidance right up until race day.
  • Training plan and expert tips for runners of all levels.
  • An NDF running vest to wear with pride on your big day.

See below for upcoming events.

Got your own place?

If you have your own place in any race we will send you a free running vest and fundraising materials. This requires no minimum sponsorship—just raise as much as you can!  Register your interest  here.


Fundraising pack

Bake sales, workplace giving, coffee mornings, whatever you like.  Download our fundraising pack with ideas, helpful hints, customisable posters and a sponsorship form

For help or advice please email Kelly, our dedicated fundraiser.

Captain Tom 100Open to everyone

To celebrate Captain Tom Moore’s amazing achievements and mark what would have been his 101st birthday, everyone’s invited to take part in a fundraising challenge.

All you need to do is dream up a challenge based around the number 100, and do it between Friday 30 April and Monday 3 May.

You could walk 100 laps of your garden just like Captain Tom, swim 100 lengths or sing for 100 minutes.

Find information on how to take part and raise money for the NDF on the Virgin Money Giving site.

Registration fee: £25

Sponsorship pledge: £250

The picturesque, flat course takes you through four of London’s Royal Parks, including Hyde Park and Kensington Gardens, past Buckingham Palace and the Royal Albert Hall.

There is no ballot this year, so running for a charity is your only chance to take part, and we’d be delighted to welcome you onto #TeamNDF!

Email us to sign up to run for team NDF.

Sponsorship pledge: £2000

NDF has ONE charity place available for the London Marathon.
Apply here:

If you have a deferred place from last year’s London Marathon or you successfully entered the London Marathon ballot please consider running for NDF - no minimum sponsorship!

Research into Norrie Disease is severely underfunded.

The limited research into Norrie Disease hearing loss has already made a difference but more research is urgently needed.

Our aim is to develop clinical trials of therapies to prevent hearing loss happening, or to slow down, or stop, the progression.

This will change the future for our blind community who have already lost one sense.