Imagine a world without sight

Now imagine it without sound too.

This is the reality facing children, young people and adults with Norrie Disease.

You can help the NDF fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.

Fundraise or Donate now!

£191 000 
raised since 2017

2021 Goal

Ways to fundraise

Run or ride for us

We have charity places in several iconic races. Join Team NDF and you’ll receive:

  • Fundraising and training support, advice and guidance right up until race day.
  • An NDF running vest to wear with pride on your big day.

See below for upcoming events.

Got your own place?

If you have your own place in any race we will send you a free running vest and fundraising materials. This requires no minimum sponsorship—just raise as much as you can!  Register your interest  here.


Fundraising pack

Bake sales, workplace giving, coffee mornings, whatever you like.  Download our fundraising pack with ideas, helpful hints, customisable posters and a sponsorship form

For help or advice please email Kelly, our dedicated fundraiser.

The picturesque, flat course takes you through four of London’s Royal Parks, including Hyde Park and Kensington Gardens, past Buckingham Palace and the Royal Albert Hall.

Registration fee: £25

Sponsorship pledge: £250

Guarantee your place here.

If you have a deferred place from last year or have signed up recently to an autumn event, please consider running for NDF - no minimum sponsorship!

Email us to sign up to run for team NDF.

Research into Norrie Disease is severely underfunded.

The limited research into Norrie Disease hearing loss has already made a difference but more research is urgently needed.

Our aim is to develop clinical trials of therapies to prevent hearing loss happening, or to slow down, or stop, the progression.

This will change the future for our blind community who have already lost one sense.