The Norrie Disease Foundation is guided by the Scientific Medical Advisory Board in scientific matters including research efforts and direction. Our board consists of renowned experts in the field and we are very grateful to them for giving their time and expertise.
If you are visiting this page as a family with a diagnosis of Norrie disease, we want you to know that you are not alone. The Norrie community is growing, it is strong, and keen to support, hear and share experiences.
Before having a child born with a rare condition, I never understood how a disability could affect your life, what it was like to live it every single day and how other people showing understanding, compassion and inclusion could help you to live the life you lead.
https://norriedisease.org.uk/wp-content/uploads/2019/02/rdd-logo.jpg573600Tina Waldockhttps://norriedisease.org.uk/wp-content/uploads/2017/07/norrie-logo.pngTina Waldock2019-02-19 18:11:532019-02-19 18:11:53Rare disease awareness month - a time to share
The 24th of November 2018 saw the very first Norrie family day and what a fun day it was. The day involved many different activities and much entertainment, from snakes and snails to inspiring speeches.
https://norriedisease.org.uk/wp-content/uploads/2018/12/Family-Day-Ethan-and-Jasper-Snake-photo-e1544014472263.jpeg403302Tina Waldockhttps://norriedisease.org.uk/wp-content/uploads/2017/07/norrie-logo.pngTina Waldock2018-12-05 13:07:472018-12-05 13:11:02Ethan's Family Day
“Having an organisation like the Norrie Disease Foundation to raise awareness of the challenges people living with Norrie disease face and to provide vital support can make all the difference to the children and families affected.
I’m happy to be able to support a worthwhile charity.”