The Norrie Disease Foundation is guided by the Scientific Medical Advisory Board in scientific matters including research efforts and direction. Our board consists of renowned experts in the field and we are very grateful to them for giving their time and expertise.
If you are visiting this page as a family with a diagnosis of Norrie disease, we want you to know that you are not alone. The Norrie community is growing, it is strong, and keen to support, hear and share experiences.
The Power Of Sound, Norrie Disease Fundraising Concert, Saturday 16th November.
7.30pm-9.30pm, St Laurence’s Church, Catford, London, SE6
https://norriedisease.org.uk/wp-content/uploads/2019/11/The-Power-Of-Sound-16th-November-2019.png35062479Tina Waldockhttps://norriedisease.org.uk/wp-content/uploads/2017/07/norrie-logo.pngTina Waldock2019-11-09 19:11:382019-11-09 19:14:37The Power of Sound
“Having an organisation like the Norrie Disease Foundation to raise awareness of the challenges people living with Norrie disease face and to provide vital support can make all the difference to the children and families affected.
I’m happy to be able to support a worthwhile charity.”