Norrie Disease community virtual meet – 11 May 2025

On Sunday 11th May the Norrie Disease Foundation launched the first in the series of the Norrie Disease community virtual meets.  Families from around the world were joined by members from the Norrie Disease Foundation's Medical Advisory Board, Chair, Professor Jane Sowden and Dr James Arwyn-Jones based at University College London Great Ormond Street Institute of Child Health (UCL GOSICH) along with the NDF Board members. It was a fantastic opportunity for families to meet each other and hear about the very exciting research work that is taking place at UCL GOSICH to treat the Norrie disease hearing loss. Fantastic progress is being made! The research update can be viewed by clicking the link below. If you wish to join the virtual meets please contact Kelly kellyleggett@norriedisease.org.uk.