Meet the NDF Team
The NDF was created in 2017 by 3 families who connected because they each had a son with Norrie Disease. Since then they have directly raised over £400,000 which has been spent on research and family support.
Wendy is Chair, Coordinator and Co-founder of the Norrie Disease Foundation. Her role includes ensuring the board fulfils its legal requirements. She is also a spokesperson for the charity; driving the Norrie Disease Foundation forwards.
Meet Wendy HorrobinChair » 
Kelly is Co-founder and Secretary to the Norrie Disease Foundation.
Her role includes setting agendas, minute taking, maintaining records and communicating with members.
Meet Kelly LeggettSecretary » Her role includes setting agendas, minute taking, maintaining records and communicating with members.
Kelly is the Norrie Disease Foundation’s Treasurer and Sporting Fundraising Events Lead.
Meet Kelly RobinsonTreasurer » 
Theresa is Co-founder of the Norrie Disease Foundation and a trustee.
Meet Theresa PeacockTrustee » Medical Advisory Board
The Norrie Disease Foundation is guided by its Scientific Medical Advisory Board in scientific matters including research efforts and direction under the leadership of Professor Jane Sowden. Our board consists of renowned international experts in the field and we are very grateful to them for giving their time and expertise to the Norrie community.
Jane Sowden, PhD, is the GOSHCC Professor in Developmental Biology and Genetics at UCL Great Ormond Street Institute of Child Health.
Meet Professor Jane SowdenChair, Medical Advisory Board » 
Professor Berger is Director at the Institute of Medical Molecular Genetics (IMMG), University of Zurich, Switzerland.
Meet Professor Wolfgang BergerMedical Advisory Board Member » 
Mehul Dattani is Professor of Paediatric Endocrinology based at the University College London (UCL) Institute of Child Health, and Head of Clinical Service in Endocrinology at Great Ormond Street Hospital for Children (GOSH).
Meet Professor Mehul DattaniMedical Advisory Board Member » 
Mr Henderson is a dual trained Paediatric Ophthalmologist and Vitreo-Retinal Surgeon working at both Great Ormond Street Hospital and Moorfields Eye Hospital.
Meet Mr Robert HendersonMedical Advisory Board Member » 
Corné Kros MD PhD is Professor of Neuroscience at the University of Sussex.
Meet Professor Corne KrosMedical Advisory Board Member » 
Dr Ngozi Oluonye is a Developmental Paediatrician and has worked as a Consultant in the National Health Service (NHS) for 13 years.
Meet Dr Ngozi OluonyeMedical Advisory Board Member » 
Dr Sirimanna is a Senior Consultant Audiological Physician at Great Ormond Street Hospital for Children (GOSH).
Meet Dr Tony SirimannaMedical Advisory Board Member » 
Mr. Wong is a consultant ophthalmologist and vitreoretinal surgeon at Great Ormond Street Hospital for Children (GOSH), Moorfields Eye Hospital and the Royal Free Hospital.
Meet Mr Chien WongMedical Advisory Board Member » 
The Norrie Disease Foundation was created with help, support and dedication from Professor Maria Bitner-Glindzicz who very sadly died in September 2018.
Meet Professor Maria Bitner-Glindzicz » Our Ambassadors
The NDF is lucky to have 4 fantastic ambassadors to support our cause.
TV personality, adventurer and author Simon Reeve is an Ambassador for the Norrie Disease Foundation.
Meet Simon ReeveAmbassador »
Selina was the first female in the world to be diagnosed with Norrie Disease. Her brother and two uncles are also affected by the condition.
Meet Selina LittAmbassador » 
Anthony Pitch Ryers is from Belgium and born in 1992. Anthony knows how to live every minute of his live to the full – radiating passion and enthusiasm.
Meet Anthony Pitch RyersAmbassador » 
David Wilkins has Norrie disease which has left him totally blind from birth and partially deaf since the age of 13. David says ‘The latter was a serious blow because I knew exactly what I was losing. ”
Meet David WilkinsAmbassador » Enter name into search field and/or narrow down the search results by selecting position.