Kelly is Co-founder and Secretary to the Norrie Disease Foundation.
When Alfie was diagnosed, Kelly and Tom found it hard to access accurate information about Norrie disease. This left them feeling uncertain about Alfie’s future and where to seek the best professional advice. At that time there was very little ongoing research, information and support for families.
Kelly is passionate about raising funds for vital, fresh research into Norrie disease.
Roles and Responsibilities:
- taking minutes of meetings;
- setting the agenda for the meetings;
- maintaining records
- communicating with members.