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Author: T (page 4)

Author: T (page 4)

Siblings are very important

I heard you’re the sibling to a child with special needs, and I wanted to write you a letter explaining why you have a one-up on life. I know your life might seem hard or different from your friends, but trust me, you most definitely will be more prepared for this life than anyone else. Let me explain…
Continue reading “Siblings are very important”…
Posted on: 01 Apr 2019Written by: TComments: Comments: 0

Dual Sensory Loss

I have Norrie disease which is a very rare X-linked genetic condition which causes mainly boys to be born blind or severely sight impaired. The majority of sufferers also experience progressive hearing loss.
Continue reading “Dual Sensory Loss”…
Posted on: 13 Mar 2019Written by: T

What Braille Means to Anthony

Although I was diagnosed with dyslexia and am hence less good in Braille than I would like to be, I never for a minute underestimated the importance of Louis Braille’s work.
Continue reading “What Braille Means to Anthony”…
Posted on: 13 Feb 2019Written by: T

What Braille Means to Me

The question first came up on the deck of the Tenacious, a tall ship for the disabled. And this was such an odd question it took me by surprise ‘but David, why do you bother with braille when you have audio instead?
Continue reading “What Braille Means to Me”…
Posted on: 13 Feb 2019Written by: T

Cameron’s Smile – Young Carers Awareness Day 2018

My sister has been helping to provide care for me since the day I was born.
Continue reading “Cameron’s Smile – Young Carers Awareness Day 2018”…
Posted on: 30 Dec 2018Written by: T

Ethan’s First Family Day

The very first family day involved many activities and much entertainment, from snakes and snails to inspiring speeches.
Continue reading “Ethan’s First Family Day”…
Posted on: 25 Nov 2018Written by: T

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Latest News

22 Jul

Join the National Norrie 25km fundraising walk weekender 5th & 6th September

Come walk with lovely friendly people – make new friends or reconnect with old ones whilst raising vital…
Continue reading “Join the National Norrie 25km fundraising walk weekender 5th & 6th September”…
04 Jul

James Arwyn-Jones receives prize for best Otology oral presentation at BACO 2026

We are so proud of James Arwyn-Jones, Norrie disease Surgeon Scientist PhD for receiving the prize for best…
Continue reading “James Arwyn-Jones receives prize for best Otology oral presentation at BACO 2026”…
23 Jun

Helpful feedback from the London NDF Family Day

Some more helpful feedback from the London NDF Family Day from Rob Edge, Grandad to 2 year old…
Continue reading “Helpful feedback from the London NDF Family Day”…

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