Thunderbolts raise £436

The Thunderbolts playingWell done to the Thunderbolts for raising an amazing £436 at last night’s gig in Kelvedon, Essex!

What stars you are Ethan and Jasper Peacock.

The night was dedicated to Professor Maria Bitner-Glindzicz in memory of her incredible support to the Norrie community.

Run for team NDF in 2019

Do you want to run and raise funds for the Norrie Disease Foundation?

We have secured charity places at the 2019 Brighton and London marathons and the Bath Half marathon. All are iconic events on the running calendar which sell out every year.

100% of funds raised will go towards a Family Fun Day to provide a safe and fun environment and peer support for all members of the family affected by Norrie disease.  All runners will receive a NDF running vest, and support and advice on training and raising sponsorship.

Contact kellyrobinson@norriedisease.org.uk for information.

Please note the deadlines to apply for places:

  • London Marathon – Friday 19th October 2018
  • Bath Half marathon – Friday 18th January 2019
  • Brighton Marathon – Friday 1 February 2019

Do you already have a place at an event and wish to join Team NDF? Please get in touch with Kelly

Badminton Fundraising Event

A massive thank you to Livi and Sienna at John Ball School and all their amazingly supportive friends and families for holding a badminton charity fundraiser yesterday raising an incredible £250 for the Norrie Disease Foundation.

Thank you so much. We are so lucky to be surrounded by such wonderful people. Kids and dogs playing badminton People chatting at the badminton event

Baby Steps Fitness Fundraising Event

Well done to Jenni Lieu from Baby Steps Fitness www.babystepsfitness.co.uk and Esther Trewinnard from Thula Mama www.thulamama.co.uk and to all the Mums and Dads and children who raised an incredible £700 through a fitness Fundraising Bootcamp and a Fitness and Music session in Manor House Gardens.

A huge thank you to everyone who took part and to all those who couldn’t make it but still donated.

 

Fundraising – A night of music, quizzes and auctions

Huge congratulations to Theresa and Neil Peacock and the amazing Thunderbolts – Ethan and Casper Peacock who raised an incredible £1000 for the Norrie Disease Foundation in an evening of brilliant music, quizzes and auctions. Thank you so much to all Theresa and Neil’s friends for your support and of course a very big thank you to Ethan and Casper for sharing their talents.

The Norrie Disease bannerThe show in progress on the stage Kids playing instruments

 

 

 

Supported by:

jeans for genes day logo

genetic disorders logo

Our big push this year is Jeans for Genes Day on the 22nd September. The Norrie Disease Foundation were honoured to receive a Genetic Disorders UK grant from funds raised on last year’s Jeans for Genes Day. Jeans for Genes was set up to provide grants to disorder-specific charities and patient groups to fund projects and services for children affected by genetic disorders.

Kids playing at a farmLast summer Solomon and Jake chose the Norrie Disease Foundation to receive donations given at their eighth birthday party. They raised a fantastic £380. Jake and Solomon, along with their family and friends, hosted a wonderful party at a gorgeous farm in Surrey where they fed and groomed the animals and even milked the cows.

Our Treasurer, Theresa Peacock, asked her friends to donate to the Foundation instead of giving anniversary presents to Theresa and Neil. A very generous £300 was raised for the Norrie Disease Foundation – and we are very grateful to Theresa and Neil’s friends for their kind donations.