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Community Stories – The Norrie Disease Foundation

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Category: Community Stories

Category: Community Stories

Remembering Prof. Maria Bitner-Glindzicz

Sharing in memory of dear Prof. Maria Bitner-Glindzicz – such a kind and amazing geneticist and beautiful human…
Continue reading “Remembering Prof. Maria Bitner-Glindzicz”…
Posted on: 25 Nov 2025Written by: Neil P

RNID Hearing Therapeutics Summit 2025 in London

Such a privilege to attend the RNID Hearing Therapeutics Summit 2025 in London! Amazing to listen to inspirational…
Continue reading “RNID Hearing Therapeutics Summit 2025 in London”…
Posted on: 22 Nov 2025Written by: Neil P

Buddy Dog family day

Josh Horrobin, who is blind and hearing impaired due to Norrie disease, aged 17, joined a Guide Dogs,…
Continue reading “Buddy Dog family day”…
Posted on: 04 Nov 2025Written by: Neil P

Slovakia Bound

By David Wilkins It’s a time old cliché that a letter or an email can change your life.…
Continue reading “Slovakia Bound”…
Posted on: 25 Sep 2019Written by: T

Norrie Family meet

zander enjoying softplay
Fifteen families met in London and enjoyed soft play; mingling; bouncy castle; trampolining and meeting new and old friends.
Continue reading “Norrie Family meet”…
Posted on: 08 Jul 2019Written by: T

Cameron’s SmileMy New Bed

I came home from school to find my new bed has been delivered. I used to have a…
Continue reading “Cameron’s SmileMy New Bed”…
Posted on: 01 Jun 2019Written by: T

Strictly come Fundraising

NDF trustee, Theresa Peacock, turned the big Four-O earlier this year and to celebrate she held a Strictly…
Continue reading “Strictly come Fundraising”…
Posted on: 29 May 2019Written by: TComments: Comments: 0

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Latest News

22 Jul

Join the National Norrie 25km fundraising walk weekender 5th & 6th September

Come walk with lovely friendly people – make new friends or reconnect with old ones whilst raising vital…
Continue reading “Join the National Norrie 25km fundraising walk weekender 5th & 6th September”…
04 Jul

James Arwyn-Jones receives prize for best Otology oral presentation at BACO 2026

We are so proud of James Arwyn-Jones, Norrie disease Surgeon Scientist PhD for receiving the prize for best…
Continue reading “James Arwyn-Jones receives prize for best Otology oral presentation at BACO 2026”…
23 Jun

Helpful feedback from the London NDF Family Day

Some more helpful feedback from the London NDF Family Day from Rob Edge, Grandad to 2 year old…
Continue reading “Helpful feedback from the London NDF Family Day”…

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The Norrie Disease Foundation
PO Box 12476
Colchester
CO1 9RB

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