After connecting with families for the first time they gave us stories they wanted to share. If you wish to share your stories on this page then please contact us.
Family Stories are the personal views and experiences of the authors and should not be read as action or advice from the Norrie Disease Foundation.
Slovakia Bound
By David Wilkins It’s a time old cliché that a letter or an email can change your life.…
Norrie Family meet
Fifteen families met in London and enjoyed soft play; mingling; bouncy castle; trampolining and meeting new and old friends.
Cameron’s SmileMy New Bed
I came home from school to find my new bed has been delivered. I used to have a…
Strictly come Fundraising
NDF trustee, Theresa Peacock, turned the big Four-O earlier this year and to celebrate she held a Strictly…
Cameron’s Smile – don’t be sad
I was born without it and I will never know any different. You don’t need eyes to see…
Siblings are very important
I heard you’re the sibling to a child with special needs, and I wanted to write you a letter explaining why you have a one-up on life. I know your life might seem hard or different from your friends, but trust me, you most definitely will be more prepared for this life than anyone else. Let me explain…
Dual Sensory Loss
I have Norrie disease which is a very rare X-linked genetic condition which causes mainly boys to be born blind or severely sight impaired. The majority of sufferers also experience progressive hearing loss.
What Braille Means to Anthony
Although I was diagnosed with dyslexia and am hence less good in Braille than I would like to be, I never for a minute underestimated the importance of Louis Braille’s work.
What Braille Means to Me
The question first came up on the deck of the Tenacious, a tall ship for the disabled. And this was such an odd question it took me by surprise ‘but David, why do you bother with braille when you have audio instead?
Cameron’s Smile – Young Carers Awareness Day 2018
My sister has been helping to provide care for me since the day I was born.