Imagine a world without sight

Now imagine it without sound too.

This is the reality facing children, young people and adults with Norrie Disease.

You can help the NDF fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.

Since 2017 we have raised almost £1 million through fundraising and research grants, enabling us to fund pioneering hearing loss research and better support the Norrie Disease community.

Fundraise or Donate now!

£1,000,000 
raised since 2017

£80,000
2026 Goal

Ways to fundraise

Run or ride for us

We have charity places in several iconic races. Join Team NDF and you’ll receive:

  • Fundraising and training support, advice and guidance right up until race day.
  • An NDF running vest to wear with pride on your big day.

See below for upcoming events.

Got your own place?

If you have your own place in any race we will send you a free running vest and fundraising materials. This requires no minimum sponsorship—just raise as much as you can!  Register your interest  here.

 

Fundraising pack

Bake sales, workplace giving, coffee mornings, whatever you like.  Download our fundraising pack with ideas, helpful hints, customisable posters and a sponsorship form

For help or advice please email Kelly, our dedicated fundraiser.


If you have a deferred place from last year or have signed up recently to an autumn event, please consider running for NDF - no minimum sponsorship!

Email us to sign up to run for team NDF.

Ask your workplace or school to make NDF their charity of the year.

Bake cakes and sell them to colleagues. Set up a fun run at lunch.

Set up an NDF stall at your school fairs or organise non-uniform days.

Host a coffee morning or curry night. Set up a quiz night at your local pub.

Join EasyFundraising and a percentage of your online purchases will go to NDF.

Make a donation, set up Payroll giving or a standing order.


Research into Norrie Disease is severely underfunded.

The limited research into Norrie Disease hearing loss has already made a difference but more research is urgently needed.

Our aim is to develop clinical trials of therapies to prevent hearing loss happening, or to slow down, or stop, the progression.

This will change the future for our blind community who have already lost one sense.