Royal Parks Half Marathon 2024October 2024
Run the most scenic half marathon and fundraise for the Norrie Disease Foundation! This stunning race takes place on closed roads through four Royal Parks and past world-famous landmarks.
If you are interested in running, please complete our online form.
What is Norrie Disease?
Imagine a world without sight, now imagine it without sound too.
Norrie Disease is a rare genetic condition causing blindness/severe visual impairment from birth, as well as many secondary conditions including progressive hearing loss.
What we do
The Norrie Disease Foundation is a UK based charity.
We promote pioneering research into Norrie Disease and provide vital support to families living with the condition.
Living with Norrie Disease
If you are visiting this site as a family with a diagnosis of Norrie Disease, we want you to know that you are not alone.
The Norrie community is growing, it is strong, and keen to support, hear and share experiences.
Donate or FundraiseResearch into Norrie disease is severely underfunded
You can help the Norrie Disease Foundation fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.
Donate or Fundraise for us.
Medical Advisory Board
The Norrie Disease Foundation is guided by its Scientific Medical Advisory Board in scientific matters including research efforts and direction under the leadership of Professor Jane Sowden.
Our board consists of renowned international experts in the field and we are very grateful to them for giving their time and expertise to the Norrie community.
Latest news and family stories
Ollie attends the European Society of Gene & Cell Therapy (ESGCT) conference
GOSH Charity National Funding Call
Facebook Feed
Simon Reeve - NDF Ambassador
“Having an organisation like the Norrie Disease Foundation to raise awareness of the challenges people living with Norrie disease face and to provide vital support can make all the difference to the children and families affected.
I’m happy to be able to support a worthwhile charity.”
