Testimonials

What our patients say?


We pride ourselves with being a very forward thinking practice and we work holistically with our patients and where appropriate their families to ensure that they receive the treatment and care that works for them.

Do you want to tell us your experience or suggest an improvement in our services? Just send us your feedback today via a form on our Contact page.

Independence

The very best parting gift any parent could give a child with Norrie is teaching them to be as independent as they can be. How to make tea, cook, clean and perhaps even (oh perish the thought) live on their own. It is not easy, there are worries and tears and hazards to be faced along the way. But with this gift a child with Norrie will grow up feeling they are every bit as good as their peers.

David Wilkins - an adult with Norrie who is blind and uses hearing aids

In Touch

It is great to be in touch with other families. As it is such a rare condition you can feel very isolated.

J’s son M, four, has Norrie disease and is blind

Connect

The NDF is important to me because it means I can connect with other people like me. I am also worried that one day I might start to lose my hearing, the NDF gives me hope for the future.

Ethan

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Hope

We didn’t want families to feel as alone as we did after our son’s diagnosis. Sharing information and resources is vital for families who have a child with a rare disease and new research gives us hope for the future.

T & K, parents of a child with Norrie disease

Connect

The NDF is important to me because it means I can connect with other people like me. I am also worried that one day I might start to lose my hearing, the NDF gives me hope for the future.

Ethan

In Touch

It is great to be in touch with other families. As it is such a rare condition you can feel very isolated.

J’s son M, four, has Norrie disease and is blind