Team Profiles

Wendy Horrobin

Wendy Horrobin

Chair and Coordinator

Wendy is Chair, Coordinator and Co-founder of the Norrie Disease Foundation. She is married and has two children, Chloe 12, and Josh 10, who has Norrie disease. Before becoming a mum Wendy taught English as a second language abroad and then settled in the UK as a project manager working across various educational and community projects.

Wendy became involved with setting up the Norrie Disease Foundation because she wanted to help get new research into Norrie disease starting with finding a cure for the progressive hearing loss. Wendy is a board member for the Norrie Disease Association in the USA and attended the Norrie Disease Association conferences in Boston in 2015 and 2018.

When Wendy is not working on the Norrie Disease Foundation she spends her time with her family,  brushing up on her braille skills or doing DIY with Chloe.

Wendy’s role includes ensuring that the board fulfills its legal requirements; helping with planning and running of trustee meetings; acting as a spokesperson for the charity; driving the Norrie Disease Foundation forwards to achieve its aims and objectives of engaging in fresh new research whilst supporting and strengthening the Norrie community.

Wendy’s vision for the Norrie Disease Foundation is:

  • To support global collaborations in working towards finding a treatment for the Norrie disease hearing loss and engaging in new Norrie research
  • To help set up a European focused Norrie disease patient registry with intention to collaborate globally
  • To help strengthen the Norrie disease community
  • To promote and share medical and research contacts and knowledge for families and health professionals.

wendyhorrobin@norriedisease.org.uk