New research partnership

The Norrie Disease Foundation are very excited to announce their new research partnership with Sparks and Great Ormond St Hospital Children’s Charity national funding call to improve the treatment or quality of life of patients with Norrie disease, particularly focusing on the Norrie disease progressive hearing loss.
Child health research is significantly underfunded, with only 5% of UK research funding spent on projects relating to child health. Sparks and Great Ormond Street Hospital Children’s Charity (GOSHCC) fund groundbreaking research into a wide range of conditions. The pioneering projects it supports are carried out at leading hospitals and universities throughout the UK and continue to make a significant contribution to breakthroughs and new treatments being used by doctors all over the world.
The Norrie Disease Foundation has been invited to form a research partnership with Sparks and GOSHCC on its 2019 National Call – each year, £2 million in research funding to support pioneering project grant applications from researchers is available, with up to £250,000 is available for each grant application. This supports projects researching some of the most difficult and hard to treat childhood diseases and aims to improve diagnosis and develop more effective and kinder treatments for children who desperately need them.
With huge thanks to Sparks and Newlife, research into the Norrie disease hearing loss started in 2017 under the late Professor Maria Bitner-Glindzicz’s team at University College London Great Ormond Street Institute of Child Health. We are very excited to have the opportunity to move this research forwards thanks to the Sparks and GOSHCC national funding call.