Norrie families meeting at Southbank

NDF’s 4th Family Day

Norrie boys at Southbank

8 members of our Norrie community ranging from 14 months upwards.

On Saturday 24th February the Norrie Disease Foundation enjoyed its 4th Family Day. It was a great way to have an early celebration for Rare Disease Day which took place on February 28th.

Families came together at London’s Southbank and it was fantastic to welcome back families we had met before and new families. The day flew by with much laughter, conversation, even some poetry and exchanging of experiences and life stories – everything so precious about bringing a rare disease community together.

Thank you so much to the families that could make the trek and staff from GOSH and the Greenwich Sensory Team who came to say hello.

We really missed the families who couldn’t make it but we are looking forward our next meet up already and especially looking forward to being able to sponsor some family days in 2019.