The Norrie Disease Foundation and its Medical Advisory Board are devastated to share the sad news of Professor Maria Bitner-Glindzicz’s passing. Maria was a dear friend to the Norrie community and a brilliant geneticist and researcher. She was the driving force behind the creation of the Norrie Disease Foundation, the formation of its Medical Advisory Board and the pioneering research she initiated into the Norrie Disease hearing loss to see if it can be treated with gene therapy. The Norrie Disease Foundation wouldn’t be where it is today without all her incredible support.
Maria went out of her way to meet and listen with families to see how she could help them; she was our champion and committed advocate. Maria took a personal interest in all of the families she came across and went to great lengths to help each and every one of them. For a researcher to agree to help such a rare community was incredibly precious. Maria will be so missed by the Norrie community and throughout the genetic and hearing world. She was one in a million. Our thoughts are with her family and friends at this sad time.