Educational Setting Leaflet

The NDF Educational School Leaflet aims to provide general information about Norrie  Disease (ND), its management and how to support the education  of children and young people in schools and educational  settings.

You will find this leaflet useful if you work in a school or other educational setting with children or young people with  ND.

If you are the parent or carer of a child or young person with  ND, then you could use this guide to engage with the school or  educational setting about your child’s needs.


Braille is a system of raised symbols that can be read by the fingers of people who are visually impaired. A braille cell is made up of six dots, arranged in two parallel lines of three (like the arrangement of a six on dice or dominoes). Parents, and those that may work with a child with a vision impairment, would ordinarily read braille with their eyes if they are sighted.

There are two types of braille. Grade 1, or uncontracted braille, is a code with one symbol for each letter of the alphabet and a few other symbols for punctuation and numbers. Grade 2, or contracted braille, uses the same alphabet code but has lots of extra signs for common words and combinations of letters.

The VI team that work with your child will be able to explain more to you about braille and how it will be taught to your child.

If you want to learn braille yourself, there are courses that you can pay to do with the RNIB – more information about the courses can be found on the RNIB website.

There is also a free online course that you can do, for more information click on the following link:

Children can learn to write Braille on a Perkins Brailler, this is a mechanical writing machine for producing braille.

Pre-braille skills
Prior to learning braille, children need to develop motor skills and touch discrimination. This is so that they can use their fingers to read the braille through touch. They also need to have enough strength in their fingers to be able to use a braille machine.

There are lots of fun activities to suit all ages and abilities, from playing with playdough, using peg boards, popping bubble wrap, squeezing toys, sorting shapes – the list goes on! Again if your child has a QTVI, they will have lots of suggestions of activities you can do with your child.

The Paths to Literacy website has a very useful article with suggestions of activities to help develop all the specific skills and strengths needed prior to reading braille.

Braille books can be borrowed from a number of places.

ClearVision is a postal lending library of children’s books designed to be shared by visually impaired and sighted children and adults. They have lovely tactile books and picture books that can be enjoyed by all. Borrowing books from them is a great way to introduce children to feeling braille before they learn to read.

The RNIB have a library that is free to join. Books are available in both grade 1 and grade 2 braille. They also have talking books available.

A boy typing on a Braille typewriterTypewritten brailleA boy typing in Braille