Family Stories

Content of the Family Stories and Blogs is the personal views and experiences of the authors and should not be read as action or advice from the Norrie Disease Foundation.

Cam

Cameron’s smile – my wonderful new bed

I came home from school to find my new bed has been delivered.

I used to have a Kinderkey cot, with 6 foot enclosed padded sides, but due to my development over the past year, we decided I was now ready for a high low floor bed.

This will help my independence so much, being able to get in and out of bed all by myself, and being able to play and chill out in my bedroom freely.

The bed goes right down to the floor for sleeping, and it also raises and tilts for changing and feeding.

We will also be adapting my bedroom door and installing video monitors to make it as safe as possible for me in the night.

I love my new bedroom so much  💙

I hope I manage a good nights sleep in my new bed this evening.

Cam and Carla

Cameron’s Smile – Don’t be sad

We can not change the cards we are dealt in life, Just how we play the hand.

I do not see a disease or a condition when I look at you.

I do not see a disability, difficulties or problems.

I see your soul. A happy, carefree, determined, fearless, clever soul who has opened up my heart to a love that I never imagined.

Don’t be sad that I am blind.

Im far from sad.

I didn’t lose my sight.

I was born without it and I will never know any different.

You don’t need eyes to see the beauty in the world.

Everyday I sense it.

I touch it, I smell it, I hear it, I taste it.

I feel love, happiness and joy every single day.

The challenges I am sent make me strong and ready for the world.

Don’t be sorry I am blind.

You do not need sight to have vision.

The Norrie Disease Foundation funds animal workshops – visually impaired children may have little opportunity to touch and feel different animals and therefore, compared to their sighted peers, may have a more abstract or less realistic understanding of animals.