March 1, 2019
Teddy’s journey so far…
On the 24th March, 2016 at 8:14am we welcomed our beautiful baby boy Teddy into the world. He was amazing and everything that we could have dreamed of. The doctor came
February 19, 2019
Rare disease awareness month – a time to share
February is rare disease awareness month – a time to share stories, raise understanding and show acceptance. Before having a child born with a rare condition, I never understood how
February 9, 2019
Why bother With Braille?
January was Braille Literacy Month and the Norrie Disease Foundation have shared some stories from the Norrie community about what Braille means to them. Why bother With Braille? By David Wilkins
February 4, 2019
What Braille means to me
by Anthony Pitch Ryers who has Norrie disease. Although I was diagnosed with dyslexia and am hence less good in Braille than I would like to be, I never for a
February 1, 2019
Rare Disease Awareness
Five years ago our lives were affected by a rare genetic disease. I will never forget the day my world came tumbling down before me. The day my beautiful baby
