January 1, 2019
Cameron’s Smile – Young Carers Awareness Day 2018
Yesterday was Young Carers Awareness Day 2018. My sister has been helping to provide care for me since the day I was born. She understands about my conditions and disabilities
December 5, 2018
Ethan’s Family Day
The 24th of November 2018 saw the very first Norrie family day and what a fun day it was. The day involved many different activities and much entertainment, from snakes
The Norrie Disease Association held its 4th conference 9th-11th August at the Massachusetts Eye and Ear Hospital, Boston 2018. It was an amazing coming together for around 26 families from
November 20, 2018
ND Awareness Week: What is ND and the ND Foundation?
Norrie Disease is a rare genetic condition causing blindness/severe visual impairment from birth, as well as many secondary conditions including progressive hearing loss. It affects mainly boys. NDF is in contact with
November 2, 2018
Cameron’s Smile – Determination pays off
I have always struggled with my mobility outdoors. Being out in the open can often be nerve – wracking. The acoustics are completely different to indoor spaces. There are lots