This is the first #NorrieDiseaseAwarenessWeek! We will be sharing information about what #NorrieDisease is, what it’s like for families living with Norrie disease, the achievements of our community, and shining
Cam Standing
I have always struggled with my mobility outdoors. Being out in the open can often be nerve – wracking. The acoustics are completely different to indoor spaces. There are lots
Family Stories
Well done to the Thunderbolts for raising an amazing £436 at last night’s gig in Kelvedon, Essex! What stars you are Ethan and Jasper Peacock. The night was dedicated to
Do you want to run and raise funds for the Norrie Disease Foundation? We have secured charity places at the 2019 Brighton and London marathons and the Bath Half marathon.
Fundraising, News
Ethan smiling
Just recently I read a book called Wonder, written by R.J Palacio. The story is about a boy who was born with a rare facial deformity and what everyday life
Family Stories